And so, I would like to test the view from atop "a temporary platform used while making an impromptu or nonofficial public speech." (Thank you, thefreedictionary.com, for that definition of soapbox) I would like to take a small stab at changing my world. The one thing that people say to me quite often that really gets my goat is: "What's wrong with her?" Simple enough, right? And some of you are even saying, "Well that doesn't bother me, I appreciate them taking an interest instead of whispering behind their hands." I TOTALLY agree with you. I have NO PROBLEM with people asking about Anabelle's condition, and welcome the opportunity to spread awareness. I do not consider them insensitive dolts if they ask this. What I take issue with is that this is the accepted way for inquiring about how my child differs from theirs. Put very simply: what's WRONG with her? Absolutely nothing.
It is time to stop viewing different as wrong. And time to stop accepting that if it is a rare difference, it is okay to publicly declare it as "wrong". Can you imagine if we went about in every day life calling out differences like that?
You are wearing these:
"What's wrong with your eyes?"
This is the top of your head:
"What's wrong with your hair?"
You write like this:
"What's wrong with your hand?"
It is time to change the lexicon, people! I am calling for your help, all 35 followers of this blog and whichever of my 200 some-odd friends I can muster when I post this on Facebook: let us begin to spread a new way of engaging in a conversation about the differences you see in another person. I propose this:
HOW IS HE/SHE SPECIAL?
I am, however, totally open to suggestions. Let's brainstorm this one, come to a consensus, and spread the word! I don't want people saying in front of my child (or her typical sister): "What's wrong with her?" This is not the message we should be imparting. My child isn't broken. She doesn't have something that needs to be corrected. She was made the way she is, and it is perfectly suited to her being. Don't ask me what is wrong with her, ask me how her differences make her world such a special place to be.
"Ain't Nothin' Wrong with Me, Baby!"